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HealthTree University opens to help myeloma patients be better informed

The HealthTree online portal has opened a free online patient resource that connects multiple myeloma experts from around the world with patients to help them better understand their disease, so doctor visits can be better spent on personalized care.

More than 120 myeloma specialists are expected to participate in HealthTree University (HTU), which offers a comprehensive curriculum that currently consists of more than 200 video lectures spread over 14 courses, delivered by 71 of those experts.

"When patients are first diagnosed with cancer, each has to reinvent the wheel to catch up with their disease," said Jenny Ahlstrom, founder of TheCrowdCare Foundation and HealthTree.org, in a press release. “The addition of HealthTree University makes it possible for patients to quickly learn about myeloma from top home myeloma experts so they can use clinic time to discuss their treatment plan.

"In the future," said Ahlstrom, a myeloma patient, "we hope that HealthTree University can serve as a model for educating patients about other diseases."

HTU lessons begin at three ascending levels of Myeloma Basics. In that first foundational course, topics include What is Multiple Myeloma? How long will I live? what are the signs and symptoms? and What is a monoclonal protein and how is it detected?

Patients can track their progress and advance to more complex lectures. In addition to Getting Started, general courses include Building Your Healthcare Team, Becoming an Empowered Patient, Beginning Myeloma Treatment, Autologous Stem Cell Transplantation, Precursor Conditions, Treatment of Relapsed and Refractory Multiple Myeloma, Bone Disease of the Myeloma, Multiple Myeloma Marker Testing and Monitoring, Myeloma Genetics and Precision Medicine, Drug Classes, and COVID-19 and Multiple Myeloma.

Patients can take quizzes to reinforce their knowledge and bookmark lessons for later use. They can also take notes to earn points for attending myeloma events or for a discount on telemedicine consultations.

To reflect ongoing advances in myeloma research, HTU will regularly add new content and courses.

"As an educator, I recognize that knowledge is extremely powerful," said Cynthia Chmielewski, director of HealthTree University. "HealthTree University provides people with knowledge about all aspects of myeloma, enabling them to actively participate in their care and make informed decisions."

Visit this site to view a recorded tutorial webinar on HealthTree University.

HealthTree.org is a digital community tool that helps myeloma patients explore treatment options, find clinical trials, and contribute their anonymous medical information as data that helps advance multiple myeloma research and care.

Mary M. Chapman began her professional career at United Press International, managing print and broadcast desks. He then became a Michigan correspondent for what is now Bloomberg BNA, where he primarily covered the auto industry in addition to legal, tax and regulatory issues. A member of the Automotive Press Association and one of a relatively small number of women in the automotive industry, Chapman has spoken about the automotive industry several times on National Public Radio, and in 2014 she was selected as an honorary judge at the prestigious Cobble Beach Concours. d 'Elegance. He has written for numerous national outlets including Time, People, Al-Jazeera America, Fortune, Daily Beast, MSN.com, Newsweek, The Detroit News, and the Detroit Free Press. Winner of the Society of Professional Journalists Award for Outstanding Reporting, Chapman has published dozens of articles in The New York Times, including two on the coveted front page. He has completed a manuscript on the centennial car enthusiast Margaret Dunning, entitled "Belle of the Concours."

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Inês has a Ph.D. in Biomedical Sciences from the University of Lisbon, Portugal, where she specialized in biology of blood vessels, blood stem cells, and cancer. Before that, she studied Cell and Molecular Biology at the Universidade Nova de Lisboa and worked as a researcher at the Faculdade de Ciências e Tecnologias and the Instituto Gulbenkian de Ciência.
Currently, Inês works as chief scientific editor, and strives to deliver the latest scientific advances to patient communities in a clear and precise manner.

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